what would you do...
What would you do if your husband, your best friend, your son, your brother was fighting a deadly disease? What would you do if the cure to that disease was hidden in a sea of people and the odds of finding it were 1 in 30,000? more...
meet jonathan
Jonathan is a 32-year old athlete, sports fan and outdoor lover. He is as much at home hiking the trails as he is traveling the globe with his wife and college sweetheart. He is fighting leukemia and looking for a match. more...
Bring on the FLAM
Jonathan and I are back in Baltimore this Labor Day, celebrating the official end of summer with a bang: the start of Jonathan’s next — and hopefully last — round of chemo here at Hopkins. Hard to believe that it’s 6 months to the day since Jonathan started on this crazy chemo battle.
As Jonathan’s last post mentioned, despite the amazing turnout and support for our donor drives throughout July and August, a fully matched donor for Jonathan has not been found. His medical team searched for both bone marrow and cord blood donors to no avail. So, without a perfect bone marrow match or a suitable cord blood donor, Jonathan’s next step is another round chemo — a regimen called FLAM — followed by the mini-haplo transplant Jonathan described the other day, an experimental bone marrow transplant using stem cells from a half-matched donor, later this fall.
But we don’t want you to feel as if the drives were anything less than a success. Team Haupt hosted more than 30 bone marrow donor drives in a month and a half coast to coast. Read the rest of this entry »
11 CommentsHeading Back to Hopkins
I’m slated to be admitted on Monday (9/7) for another round of FLAM — same chemo as last round. This is in preparation for the transplant that’s supposed to happen early November. My docs want to make sure they get all the disease before transplant hence the more chemo. Not looking forward to this round…but you got to do what you got to do.
What a Flippin Success!
We had such a great time at the first annual Flip You, Leukemia! flip cup tournament at RFD on Saturday. So many people came out and supported Team Haupt and donated to the fight against leukemia. Special thanks to Whitney and Linnea for putting it all together…can’t wait for next years event!
Flip You, Leukemia!
Those of you in the DC area — come on out to RFD for a charity Flip-Cup Tournament and help support Team Haupt! If you want to join an existing team or start your own please contact us at flip.you.leukemia@gmail.com. Can’t wait to start flipping!
Great Turnout at Portside
Party at Portside
Party at Portside in Canton Square to help raise money for Bone Marrow Testing!
From 7pm-11pm on Wednesday, August 19th, a $10 donation at the door will get you the following specials all night!
$2 Miller Lites
$3 Stoli Drinks
$5 Red Bull Vodkas
$5 Firefly Drinks
100% of your $10 donation will go to Team Haupt and directly fund bone marrow testing. Team Haupt has partnered with two organizations, DKMS and Gift of Life to organize bone marrow drives all over the country. Come out and support Team Haupt!
Cancer Is Hilarious
In case you haven’t had a chance to check it out yet, Newsweek is running great online exclusive about young adults using humor to fight cancer:
A Malignant Melanoma Walks Into A Bar…
“Cancer kills more young people than any other disease, and survival rates have not improved in more than 30 years for people in their 20s and 30s. How some patients are using humor to fight back.”
Click here to read more.
Groups like I’m Too Young For This (home of The Stupid Cancer Show) and Planet Cancer are filling a void for 20 and 30 year old cancer patients with their blend of laughter and support.
0 CommentsBaltimore Sets a Record
A Team Haupt record 330 people registered at the Baltimore JCC and 98 in Boston!
Thank you to all who came out and to all the volunteers. Without you we could not have made this happen.
Baltimore and Boston are Back
Come on out to our last Baltimore and Boston drives at the JCC of Greater Baltimore and the JCC of Greater Boston
Baltimore, MD ~ Park Heights
Sunday, August 2nd from 10AM – 4PM
JCC of Greater Baltimore
5700 Park Heights Avenue
Baltimore, MD 21215
Boston, MA ~ Newton, MA
Sunday, August 2nd from 8:00 AM – 12:30PM
Leventhal-Sidman Jewish Community Center
333 Nahanton Street
Newton, MA 02459
Help spread the word…
0 CommentsIt’s All About DC Tonight
Join us Wednesday and Thursday nights this week at the Washington JCC for Team Haupt’s final drives in the DC area!
Wednesday, July 29th • 4:30 PM to 7:30 PM
Thursday, July 30th • 4:30 PM to 7:30 PM
Washington DC Jewish Community Center
1529 16th Street NW
Washington, DC 20036
Buy the Shirt
