Calling all Team Haupt Fan in DC and Baltimore!

If you’ll be in DC this coming Saturday, March 27th PLEASE join us at RFD in Chinatown for Team Haupt’s bone marrow drive in honor of blood cancer patients everywhere — and especially for young adult cancer ninjas like Jonathan who are still searching for their full miracle marrow match.  Read the rest of this entry »

The big 100 milestone is finally here. It’s Day 100 post-transplant for Jonathan! And with spring finally hitting DC, it truly feels like we’re ready to celebrate.  There are hundreds of reasons we are thankful for each and every one of you out there, and we’re hoping you’ll help us keep up the fight and continue to raise awareness about bone marrow donation in the coming weeks and months. Read the rest of this entry »

Here’s how you can help Team Haupt: say “Flip You, Leukemia!”

What: “Flip You Leukemia!” Charity Flip Cup Tournament
When: March 27, 2010
Where: RFD-810 7th St. NW, Washington, DC 20001 (with a private entrance on 8th Street)
Time: Check in starts at 2pm, with first flip at 3pm
Cost: $10 donation per person if you are playing (this covers the cost of your beer during the games, if you wish to drink on the side you will need to purchase those separately). $5 for Fans and Friends of Team Haupt. *Drink specials will be available*

If you are interested in being a volunteer (judge, beer runner, or someone to keep Whitney calm) please let us know! Our last event was a great success as many of you may (or may not) remember and with your help we raised close to $1000 for Team Haupt! We will be back at RFD again with more fun, more raffles and of course more flips!

New this year, we will be hosting a bone marrow drive from 12-2pm in honor of Jonathan and other patients like him at RFD. So, please come early to register to become a bone marrow donor. Remember, a simple swab can save a life!

Please visit our Facebook page and post the name of your team on the event’s wall to reserve your spot. Team t-shirts and costumes are highly encouraged and may be rewarded. So, grab a team of 5 and we hope you and your friends, neighbors, enemies, and your mom will join us to help Flip Off Leukemia!

Dear friends & family,

An update to you all is long overdue. The past 2 months post-transplant have been challenging and exhausting.  I still have GVHD of my skin and liver and the side effects have been quite painful at times — but finally have some great news to share.

The results from my day +60 bone marrow biopsy have come back 100% clean – no signs of AML!  We recently got back the genetic results giving the official good news that the leukemia is not present at the cellular level and my new cells are being generated from my donor’s stem cells.  Yes, that means I’m a female – now I can get that mani and pedi I’ve always wanted.  This is best news possible.  I’ll still be going to Hopkins 2 to 3 times a week for follow ups and transfusions.  We know there is still a long road ahead of us and the fight isn’t over yet by a long shot, but we are feeling so positive right now.

However, it’s with sadness to share with you that Jon Galinson passed away on Feb 23.  Jon had chronic leukemia and he and his family hosted many bone marrow drives in CA for both of us last year.  He will truly be missed.

Team Haupt has plans to reengage in our efforts to increase awareness about bone marrow donation and to help other blood cancer patients searching for their marrow matches, so please stay tuned for more on those efforts soon.

Love,

Jonathan and Courtney

Can’t tell  you how good it feels to finally say so long to 2009…

Wishing everyone a happy New Year’s Eve. We’re kicking off the day at Hopkins with the IPOP crew. Perhaps not top on our list of ways to celebrate NYE, but suppose it’s fitting to wrap up this crazy year with one last day of treatment and a snowy commute to Baltimore add to the fun.

Sending love to all of you for helping us to climb, dance, flip and laugh our way through it.

Peace and love to all of you in 2010 ~

Yep, the blizzard of 2009, at least that’s what the news is calling it down here. We had to dig out from close to 2 feet of snow. Very pretty, but not much fun to be trekking back and forth to Hopkins in. Read the rest of this entry »

Just a quick update to let everyone know that Jonathan and Lynne are both doing well. Jonathan had a good night’s sleep at home before heading back to Baltimore today. He’s  fatigued, but everything’s moving along right on track. Lynne’s on the mend and resting well, too.  Read the rest of this entry »

Jonathan’s doing great and was released this afternoon for some much needed R&R at home. Tomorrow’s he’ll begin his daily outpatient routine back at Hopkins.  Lynne’s rebounding like the true champ that she is and reports that despite the discomfort she’s feeling after gifting Jonathan with a liter and a half of her bone marrow, she would be would be a donor again in a heartbeat!