It’s Official: Transplant Time

November 30, 2009
Author: courtney

An update from us is long overdue, so we are sending a Thanksgiving hello to let you know that you’re in our thoughts and to share the latest news on Jonathan.

December is going to be a big month – Jonathan turns 0 on December 8th.  Yep, his stem cell transplant date is finally set for the 8th and we plan to follow tradition and celebrate the big day with a Day Zero birthday party for his new cells.  We were at Hopkins today signing the consent for the clinical trial, making everything officially official.

k-bday-1

But before we get into the specifics of what the next weeks and months will look like, we want to take a minute to thank all of you again for your amazing support this year.  Friends and kind strangers alike came together in the most tremendous way to help us with our bone marrow donor drives across the country in June and July. So many of you got swabbed and donated time, energy and money to the cause to help not only Jonathan but other blood cancer patients as well.  The drives were incredibly successful – Team Haupt registered thousands of potential new donors, raised a tremendous amount of donations for DKMS and Gift of Life and helped to spread the word about how simple it is to get tested to become a bone marrow donor. And while a fully matched donor for Jonathan was not found through all of these efforts, we’ve been told that to date 4 other patients have potentially found donors thanks to our drives.

As for Jonathan, he will be getting his magic donation of stem cells from his lovely sister, Lynne, who is a half match. The transplant is part of a clinical trial at Hopkins using a procedure called a “mini haplo” that Hopkins pioneered 5 years ago. Beginning this Wednesday, he’ll undergo another week of chemo (outpatient this time) and a round of total body irradiation to suppress his immune system before the transplant. The transplant itself will be done in the outpatient unit at Hopkins– he’ll get Lynne’s bone marrow transfused through an IV over several hours and then gets to head home to recoup once it’s done.  The process is really similar to getting an infusion of blood. Pretty amazing.

The first 60-100 days after transplant are high-risk ones for infection, especially with it being flu season, so Jonathan will have to come to Hopkins for treatment every day and will need to be careful about being around lots of people for several months. Then we basically wait for the transplant to take, or ‘graft.’ We will keep everyone posted on how he’s doing here at  TeamHaupt.org, so please check back regularly to see how he’s doing and to send your encouragement. We also plan to continue to work to spread the word about other patients searching for their bone marrow matches and to host more Team Haupt events in the new year to help find a leukemia cure.

We know we have a tough several months ahead of us, but we are feeling very optimistic. We’re so thankful for your continued support and laughter online and off. Happy holidays with love to our entire extended family!


4 Responses to “It’s Official: Transplant Time”

  1. sarah wexler Says:

    Dear Jonathan and Courtney,
    I wish you “Refuah Shlemah” Amen. Hope all will go the way it is planed. You are a fighter and you will be the winner. Are prayers are with you. Lots of hugs, kisses and love. Savta Rose , Aunt Sarah and all you cousins.

  2. tyler guzman Says:

    I’m so happy they are doing your transplant on December 8TH.What a wonderful Holiday present this is. The next month will be a very trying time but there is a huge rainbow at the end. I will celebrate 10 months post transplant on December the 9Th. I have been extremely blessed with no COMPLICATIONS. I will keep you in my prayers and hope for the least amount of complications. I’M A 13 YEAR OLD LIVING A NORMAL LIFE AGAIN. VERY THANKFUL TO MY DONOR. REMEMBER ATHLETES DON’t QUIT.

  3. Julie Rando Says:

    Jonathan,
    Congratulations on making it to your transplant. I hope it all goes smoothly so you can get started on your recovery and back to your life. I had the honor of meeting your sister and friends at one of the blood marrow drives. You have a great support team. So, happy birthday! I am turning one in about a month myself (Jan. 7th) Here’s to kicking cancer’s ass and sister’s with great bone marrow/stem cells!
    All the best, Jules

  4. Stacie Says:

    Thank you so much for the update. Jonathan you are in my thoughts and prayers each day. As Tami’s doctors told her “a little GVHD is a good thing,” so here’s hoping for a little GVHD but NOT a lot. (A little means you’ll have a lowered risk or relapse because your new stem cells are really good at doing their job) I am also hoping and praying you have NO mucositis.

    The 8th will be here so soon! Lynne is like a rock star for donating her stem cells to you. It’s such a simple thing to do but I’ve been shocked time and again by stories where even family members declined to donate to a loved one. So glad that wasn’t an issue in your family. Your family is the role model of how all families should be :)


Leave a Reply